Although it never seems to be enough for me, I spend a lot of time researching autism in general and Asperger's in particular, searching for knowledge to help me understand and deal with what my grandson lives with each day, and for information that may help him as he learns to cope with a world that he sees in a much different way than I do. He is 8 years old now and has begun to realize that he is "different" from other kids in his school. Knowing how unthinking and unfiltered kids can be in their words, I'm sure that he has already, along with his other "special" classmates, been subjected to comments that he and they are "stupid", "slow", "weird" and any number of other disparaging terms. I have surmised this from some recent depression he has experienced and a voicing of things about himself that he has never heard from his mom, dad or other family members.
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I happen to mention in one of my tweets on Twitter that I was looking forward to buying the book and seeing if this true story might contain something that would be helpful to Mikey. Amazingly, a few minutes after posting that Tweet, a member of the staff of Little Brown, the publisher of the book, sent me a tweet graciously asking if I would be interested in a review copy. I gratefully accepted their offer and a few days after sending them my snail mail address the copy arrived in the mail at home. Cindy included it in one of the "care packages" that she sends me when I'm on the road and a few days later it was in my hands.
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"The Horse Boy" is subtitled, "A Father's Quest To Heal His Son" and I think that is the bedrock foundation of the entire story. Not that his son's autism isn't a major theme; it is, but it is more suffused with the belief of the father that he MUST make this quest to try and bring healing or what he feels would be healing to his son.
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Rupert had been an accomplished horseman when he was younger and growing up in England. In fact, one of the reasons he and Kristin had eventually settled in Austin was so that he could again enjoy horseback riding and perhaps teach Rowan as he grew, whenever Rupert was home from his travel writing career. Now, it seemed to Rupert that Rowan would never share his father's love of horses.
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This was a good read and I'm not just saying that because it was a review copy. Because my interests lie more in the areas of "Equine Therapy", "Equine Facilitated Learning" and "Hippotherapy", I would have wished the subject matter dealt with those therapies in greater detail. I'm not a spiritual man and do not put stock in such things, so the various rituals and trials they were instructed to endure by the shamans seemed ignorant and almost cruel to me, especially those things which made Rupert physically sick. But I can also understand a man, a father, doing everything he thinks might possibly work for his child's well-being. I cannot fault Rupert for his single-minded desire to do anything to help Rowan.
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Isaacson also brings out an interesting thought. Two of them, in fact.
First, he posits that, rather than an abnormality, autism may be it's own type of personality. A running theme through the story is that the shamans all express to Rupert that, they too, once had the behavioral traits that Rowan possess. It may help explain Rowan's calmness around them and his even allowing them to touch him, something he would not allow anyone other than his mother and father to do. There did indeed seem to be some connection.
Second, he touches on the "cure" question. At the end of the book, Rupert states that despite all the improvements Rowan experienced, "...he has not been cured. Nor would I want him to be. To "cure" him, in terms of trying to tear the autism out, now seems to me completely wrong. Why can't he exist between the worlds...It is a rich place to be. Can Rowan keep learning the skills necessary to swim in our world while retaining the magic of his own? It seems a tangible dream."
I used to silently disagree with my daughter when she would say or write that she would not want to cure Mikey. I was not going to argue with her about it, he is her son after all, but from my perspective Mikey's life would be so much easier if he did not have to deal with the Asperger's. What I wanted was Mikey, and all the things that make up Mikey to remain, except for the Asperger's so that his life would be free of that particular hardship. This is difficult to even write and I have to keep getting up from the desk because my eyes are tearing up as I try to put this down in words. You just never want your loved ones to be hurt, whether by their own actions or especially by circumstances they have no control over. Mikey didn't ask for this, nor did his mom and dad. And for a guy who never looked at the world as being "fair" or "unfair", this seemed completely unfair to me.
But a few months ago, before ever reading this book and Isaacson's words above, I came to the realization that it was ridiculous to imagine a Mikey without the Asperger's. Mikey is who he is and all those things that are a part of him, even the Asperger's, are what make him Mikey. I would not love him any more without the Asperger's and I certainly do not love him any less because of it. My daughter showed much more wisdom than her old man did on this one, but I'm glad I could find my way to this truth.
But that truth does not preclude me from continuing to seek ways and means for Mikey to have tools to help him cope with this world that does not always understand him. Whatever I can do to make things easier for him, I feel like I have to do. To not do so would mean he does not mean all that he does to me.
Even if you have no connection to the subject matter, I recommend "The Horse Boy" as an excellent story of a father, faults and all just like the rest of us, taking up the quest to heal his son. And for those of you who remember the mention of the camera and sound men who accompanied them, the film is scheduled to be out in theaters in the Fall of this year.
4 comments:
Thanks for posting this. I have still tried to look into the horse therapy here without much success. But I keep trying other ways and other means to get Mikey out of the computer shell and into the real world.
And FWIW, even if you still disagreed with me, its ok. You are one of the people I trust most to take care of him and help him and that has nothing to do with anything but loving him.
He's 8 btw :P
AnnMarie,
Thanks for those words. I know that you know how much Cindy and I love Mikey and Heather. But it's always nice to read :)
8 is what I said, lol. Look at it again. See? It says 8. I know he's 8. I can't believe you would think I would erroneously write that he is 7. I mean, really!
Love you. :)
Love you guys too.. couldnt do this without you. (both of you). And yeah fine you made me cry a little... I am so lucky to thave people who care as much about Mikey as me around.
DONT MOVE.
I mean... we'll miss you.
As you know, I believe in "hocus-pocus" things like Shamanism and this sounds like a fascinating book. I'm putting it on my reading list.
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